Oh it is hard to believe that our day is fast approaching! June 19th the day before our Surgery. My mind has been racing about how to get better neurosurgical care for children in Tulsa, OK. I am bothered by the lack of care readily available. I understand some neurosurgeons rotate to Tulsa, but Tulsa is not a little city! I think we should have our very own surgeons HERE. Right in town. I did try the Oklahoma City route, but I found the techniques outdated. I am blessed to have private insurance that allows me to travel to see a specialist that is doing research and studies in Chiari Malformation. I have also learned that Dell Hospital built a specialized neurosurgical suite for their littlest patients. After our adventure on this, I will be pouring any extra moments I have into trying to gain momemtum to get our Oklahoma Children the same benefits! Right here in Tulsa too! So, please, for anyone out there reading this now....if you know of ANYONE that can help put this together, please comment information to me!
Ok - so enough of that rant. Here is some awsome pictures of the littles. I'm trying to do things, without going out too much because they have to stay 100% healthy before surgery! We go outside a lot these days :) Trying to stay distracted is harder now that school is out. God is keeping us strong.
Swim clothing and rain boots! Best Buds
Olivia's Mean face
Mom and Dad
Trying to get Selfies with Mom ! LOL
Oklahoma Wind
So hard to let them go!!!! I trust God!
We will defeat Chiari Malformation and Syringomyelia!!!
Thank you for praying for us! We need all we can get! Love to all of our fans out there!
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