I cannot believe how time flies lately?! My girls I used to go through every moment, hour by hour, minute by minute before. So, here's the current updates:
Olivia - she has just been doing so well. She makes it a whole day at school, has a short rest after then is off to play with a friend. She is not having her anxiety in public places as much either. She has had a few headaches a month at school reported and at home about the same. They seem to come in "clusters" and then go. I want to blame the weather and I try :) No other issues at this time.
Abrianna - this girl is amazing! She has had a few headaches at school and only a couple at home, usually after a long party day or sleepover event.
So, Why are there more headaches at school??? Why do we not have the complaints at home as much?
I really believe it is for 1 reason. NECK POSITION.
At school, the kids have to look down to do their work. They will do this for longer periods at a time without moving their heads. So, then they move the head up and BAM! Headache.
I personally (not scientifically) believe the neck position does affect the CSF flow and that when the flow is interrupted, that is causing headaches.
Also, too much activity at a time. So recess, the kids know it is limited and they don't want to give their bodies a break and waste their free time. So, they plug through it and the heartrate has increased and the overall body has swelled (which is normal with activity for all people) and so how much room do our Chiari kids have to swell at all? there you go.
Finally, the observation that comes to mind is the illnesses that sneak up on us. So my kids will have "cluster headaches" and a couple days later show the illness signs of a runny nose, or cough etc. After the illness symptoms show up....headache disappears and now we are dealing with the illness alone.
Feel free to leave your thoughts on the journal about what you think makes your kids Chiari angry!
Hugs to all our fans :)
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